Livestrong Challenge Eve Part 2 of 2
August 23, 2009

- Turbine Hall
The evning began with cocktails on the main floor and slowly progressed to the full fledged dinner, which was smorgasbord of pastas, and salads. This is what the dinner floor looked like, prior to dinner:

Drew from Blame Drew’s Cancer opened the evening as he formally, welcomed the crowd to Turbine Hall and introduced John “College” Korioth, who is one Lance’s friends, but also one of the triumverant of individuals responsible for the construction of the Lance Armstrong Foundation. “College” spoke “comfortably” about the construction of the Lance Armstrong Foundation. I say comfortably, because you could tell that his arena for public speaking is probably better suited for a one to one situation or a small crowd, not necessarily a formal event. He kept trying to temper his vocab to make it more gentile for public consumption, but at the same time, I think I preferred the straight talk. He spoke to us about the amazing programs that the foundation has created through the funds that we provide. These programs include the survivorship hotline. This hotline allows cancer patients the opportunity to talk to specialists in finding doctors, working through insurance and even aiding you with your financial issues. It also, helps survivors work on reacclamating themselves to society. After speaking about the wonderful things that the foundation has done, “College” introduced the man of the night, and I’m not speaking of Ethan Zohn, who was the keynote speaker. I’m speaking of Elden Nelson a.k.a. Fat Cyclist.
Fatty was introduced to a standing ovation and his address to the crowd was touching, moving, and abosultely inspirational. Here was a man who is/was a renowned cycling blogger, but recently he has added a series of titles to his name: patient advocate, caregiver, and widower. He has fought side by side with his wife, Susan, as she battled her way through metastized breast cancer. Unfortunately, for them both, she lost her battle with cancer three weeks ago and now Elden is continuing the fight, in a style that is entirely Susan’s. Team Fatty entered the Livestrong Challenge at all four locations and raised over $650,000. He and his team swept the awards here in Philly for fundraising. Philadelphia, alone was able to put together a team of 197 riders, of which, Elden hadn’t met any of them, until last night!
As for Elden’s speech: Elden spoke with the usual eloquence and sincerity of his blog and one could tell that he was fighting the emotion that clearly overwhelmed him at times. His message was to continue our fight against cancer with the zeal and drive that brought us to this point, much like Susan’s personal battle. However, he also, stressed that we should be open about the impacts of cancer in our lives and the impacts on those around us. I had the opportunity to speak with Elden afterwards and his sense of humility and grace were clearly evident. This is a special individual and I look forward to the great things that he will accomplish.

Elden speaking

Elden and Dave

My blurry photo of Drew

Ethan Zohn speaking

Lucy and Jon on the Yellow Carpet?
August 24, 2009 at 10:34 am
YAY! I am so glad that you were able to get the pictures you wanted, albeit blurry. Sounds like a truly phenomenal time/experience.
If there’s anything I can do to help for next year, let me know. So proud of you!
August 24, 2009 at 1:29 pm
Hey Kat:
Yeah, it was a great time! Next year, absolutely! We’re gladly welcoming all comers to the G.o.C. cause!!! I will let you know what we’ve got cooking!
August 25, 2009 at 10:59 am
[...] “Livestrong Challenge Eve Part 2 of 2″ [...]
August 25, 2009 at 11:50 pm
“College,” you are wrong. Great summary of a great speech but you need to try your advice and not just speak about it. I was at the dinner having raised more than $3K. I wondered what good my money was doing until you spoke about the great programs of LIVESTRONG. When I returned home I called the LS hotline so this cancer patient could have the opportunity to talk to these “specialists.” Instead I was referred to a LS “partner” who gave me a list of 40 clinical trials that I am qualified for. Never mind that many were for a different stage of cancer. Or that I don’t want to be someone’s Guinea Pig. When I called the next day during business hours I received a message to call during normal business hours. This is not the organization that you spoke about nor that Lance created. Very disappointing.
August 26, 2009 at 10:54 am
“College” was wrong.
This frustrated patient suffered from unrealistic expectations proffered by “College.” I just spoke with a program manager at LAF and she respectfully disagreed with his comments as listed in this Blog which I believe were summarized correctly from his speech Saturday night.
They don’t have a bank of specialists waiting to direct someone to the right doctors. They must thread lightly on tricky liability issues when dispensing advise. They have created some web-based tools but some of those answers have to be fairly vague.
My take is an educated consumer is not their best client. Many patients without computers or skills to navigate through options will find their information helpful. In my situation, where I already have excellent care and access to Johns Hopkins, the information fell woefully short. Oh well.
August 27, 2009 at 5:50 am
Dear Barry:
I’m terribly sorry that you are frustrated with your experience with the LAF. I hope that you continue to find success in searching for answers and that your treatment progresses in a positive manner. Please know that I’m thinking of you and praying for your speedy recovery/remission.
Sincerely,
Dave
August 27, 2009 at 9:58 pm
Smoking damages nearly every organ in the human body, is linked to at least 15 different cancers, and accounts for some 30% of all cancer deaths. And it costs billions of dollars each year. Lisa Hundley